Hello my lovelies I’ve started with this photo. I’ve placed the photo here first, so you can see the situation I’m living with. Whether I have Reactive Hypoglycemia events or not, I’m affected by another condition called Hypothyroidism. It is sometimes known as an underactive thyroid meaning it is not working normally…
Both Mr V and I have been physically and mentally exhausted from the whole process of arranging the funeral his financial affairs, grieving for my dad aswell as clearing his flat out. Thank goodness I completed the ‘tell me once’ form yesterday and sent the proof it was done to my sibling. While my sister was being the next of kin and managed my dad’s financial affairs she says she’s not very apt with computers in general so we shared duties between us. So I was happy to fill in what was required to help where I could.
I was unaware she had special needs when it came to numbers so she never should’ve been handling the money. So it was a revelation and a shock when she’d announced in what felt kind of blasΓ© manner that she has number dyslexia in addition to dyslexia.. It was as if she’d told me already.. But my sister has number of issues and a self destruct button. My finding out she has this particular difficulty makes so much sense in hindsight why she was always penniless or over spending.
It doesn’t help that my sister doesn’t seem to think she has any problems and she can manage herself. Ordinarily I would say OK if you’re OK and can manage, but let me know if you want help. This has been happening for years and she has a history of wracking up debts. Then having to pay it back again to the creditors in installments. She also has a number of health conditions aswell as physical disabilities. This also includes the early stages of dementia.
I know you might be thinking if your sibling has these issues why haven’t you done something to help? When you’re faced with someone who says they’re OK and insists they’re fine and don’t need help. What do you do? you have to trust they know what to do and that they will ask for help. For people new to my blog space I have multiple chronic illnesses. This includes Neuropathy in my brain extremities aswell as cognitive impairments. I also have thyroid disease aswell as other medical conditions such as Reactive Hypoglycemia. These affect the cognitive functions, processes and developments in the brain and all the systems in the human body.
When I have an RH emergency the brain is starved of oxygen and once treated (usually with food) the brain takes a time to return to normal. This causes a number of chronic symptoms like drowsiness, fatigue, memory loss confusion, difficulties with concentration and what the experts call brain fog. These symptoms are typical of Reactive Hypoglycemia and both Hypothyroidism. So I’m at a disadvantage and that’s why I require a carer for my own needs. Even if I appear OK from the outside I’m unable to care for myself at times.
Lastly an example of a task I need reminding of why it’s dangerous to forget and how I get around this by myself without Mr V’s help..
In order to help myself stay organised and to remain independent I have to keep a strict routine and be strict with managing my time. I do this by creating a space to store important tasks to do (such as a notepad or book of sorts) and even as simple as writing on my phone what you want to remember or tasks to complete. Setting alarms and reminders for important things like remembering to take medication. Even making sure that I don’t switch off the phone and forget about taking the thyroxine for example.
But we’ve cleared the flat and it is as prepared as possible. The paperwork has been completed. We’ve got the celebrant visiting at 11.30am today to arrange the service. My sister has been weaning off her opiate medication so hasn’t been able to help with the flat… But as the poor darling caught covid from dad it wasn’t possible for her to help anyhow..
Hope this goes a way to understanding why the situation is very complex.. Why it’s hard to go out and at times why it’s hard to write a short list at times β€οΈ
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